We're Here to Assist You...
The Foundation is dedicated to providing support to persons of all ages in southern Arizona who have been diagnosed with lupus. This support takes many forms, but perhaps the most important aspects are information and education. Those persons newly diagnosed with the disease have many questions and concerns…and all who live with lupus need to be able to have a ready source of information regarding new treatments and research activities, or sometimes just a person (or group of people) to talk with about their disease, their doctors and the challenges of living with lupus.
Our Office and Lending Library
The Foundation’s office is located in central Tucson at 4602 East Grant Road, just ½ block west of Swan directly across the street from Applebee’s. The office is open on Tuesday, Wednesday and Thursday from 9:00 a.m. to 2:00 p.m. Office Manager Sharon Smiley is available to answer most any question regarding the Foundation and the various aspects of dealing with lupus. The Foundation’s Lending Library is stocked with over 300 titles, including books, magazine articles, video tapes & DVD’s and Braille lupus information.
Get Support from our Local Groups
Tucson Group Support
Held on 3rd Wednesdays monthly at 10AM in the Lupus Office, at 4602 E. Grant Road. This group meets with RN Helen Butler who was diagnosed with lupus in 1994. Her warmth, knowledge and compassion will prove to be an invaluable aid in living and coping with your diagnosis. Each month you will have an opportunity to share your feelings and questions with Helen and the other group members in a relaxed atmosphere. Light refreshments are always available. Please call the office at 622-9006 if you would like to attend.
Tucson One-on-One Support
At times newly diagnosed patients find group support difficult and need to sit with a trained lupus facilitator to discuss issues related to a lupus diagnosis. The One-on-One Support system provides for this need. It is open to men, women and children. The support is held at the Lupus Office, located at 4602 E. Grant Road and the time and day is decided between the facilitator and the lupus patient. To take advantage of this program, call the lupus office at 622-9006 with your contact information and we will forward your information to the appropriate facilitator.
Tucson After-Hours Support
If you’ve recently been diagnosed with lupus and cannot contact our office during working hours, we have lupus patients available for phone support: Virginia Vasquez at 751-0548 and Sue Tretter at 298-7460. These long-time lupus patients have volunteered their time to offer the support you need over the phone until you are able to contact our office.
You can request lupus support in Spanish by contacting our office, 4602 E. Grant Road. Phone 520-622-9006 and toll free at 877-622-9006. After hours bi-lingual telephone lupus support facilitators are Alicia Merrell at 327-0727 or Lilly Depka at 296-7773. Alicia and Lilly will answer your questions and contact the office with your lupus literature request.
Douglas Area Support
Held monthly at First Presbyterian Church Fellowship Hall, 1020 D Avenue, Douglas, AZ 85607, Lupus Facilitator, Carol Huddleston oversees this group of lupus and other chronically ill patients. Carol provides support and compassion to each meeting and allows the groups that meet to select which day and time monthly works best. To attend, contact Carol Huddleston at 520-364-5028.
The acronym “SLESH” refers to Systemic Lupus Erythematosus Self Help. The Foundation strives to provide ongoing SLESH classes in the Tucson area, scheduled and managed by “facilitators” who are dedicated to helping those with lupus deal with the day-to-day challenges of living with the disease.
On-line SLESH is coming!
Knowing that many people dealing with lupus are unable for any number of reasons to attend classes in person, one of the Foundation’s goals for 2012 is the establishment of on-line SLESH classes. Please watch for more information in Lupus News or here on the website.
The Foundation publishes and distributes the Lupus News four times each year. Lupus Newscontains information on coping with lupus and other mixed connective tissue diseases as well as up-to-date lupus research projects, and opportunities to participate in lupus-related clinical trials. Also, the Newsletter announces schedules and details about the Lupus Foundation’s programs and fundraising events. Periodically, Lupus News includes special discount certificates from one or more of our community sponsors.
The Lupus Foundation of Southern Arizona exists for one reason only… and that is to provide all possible support to those dealing with the disease.
Please let us know if you have any questions about our listed support services or if you would like to suggest additional opportunities that the Foundation might explore in serving the local lupus community.